"Hope deferred makes the heart sick, but a longing fulfilled is a tree of life" Prov. 13:12
Today was a disappointing day. Don't get me wrong, it was a "good" day as far as that Caden did well and even made some great strides . . . but his surgeon said this morning that he wanted him to go to step-down this afternoon, which meant we would be able to hold him today. Despite the fact that we told ourselves his moving to step-down was a long shot, I had managed to get my hopes up enough to get them soundly dashed. He couldn't go to step-down because he wasn't able to get his other heart-line out (the line that went into his heart to measure the pressure, they took the left atrium line out this morning but weren't able to get the right atrium line out this afternoon).
Nothing bad happened, there was no reason he wasn't able to get them both out except that they had set lofty goals and expected a lot out of our little man for one day, and they didn't end up wanting to push him too hard. The good news is that he is finally getting breast milk (which I have been diligently and tirelessly - but not without complaining - pumping every three hours for 2 weeks . . . ) Right now, the feeding is done continuously through a NG-tube, but they did offer him a bottle today for the first time and he drank a little bit like a champ. The nurses were totally impressed.
Now that he has most of his tubes out and is awake more often, we just think he's the cutest thing and I cant resist getting my camera out every time we're there. Plus, he still can't have visitors, so this is the best way for everyone to "meet" our little miracle!
And yesterday, Jayci even got to visit her little brother. She brought him his sock monkey and told him she loved him "all the time." Which totally melted my heart.
For the nine-thousandth time, thank you so so much for all your support and encouragement. I know that no one expects or needs a reply from me right now, but I just want you to know how sorry I am that I haven't been able to sit down and write each and every one of you a proper letter telling you how much your words and prayers and support have encouraged my heart. For real.
Today was a disappointing day. Don't get me wrong, it was a "good" day as far as that Caden did well and even made some great strides . . . but his surgeon said this morning that he wanted him to go to step-down this afternoon, which meant we would be able to hold him today. Despite the fact that we told ourselves his moving to step-down was a long shot, I had managed to get my hopes up enough to get them soundly dashed. He couldn't go to step-down because he wasn't able to get his other heart-line out (the line that went into his heart to measure the pressure, they took the left atrium line out this morning but weren't able to get the right atrium line out this afternoon).
Nothing bad happened, there was no reason he wasn't able to get them both out except that they had set lofty goals and expected a lot out of our little man for one day, and they didn't end up wanting to push him too hard. The good news is that he is finally getting breast milk (which I have been diligently and tirelessly - but not without complaining - pumping every three hours for 2 weeks . . . ) Right now, the feeding is done continuously through a NG-tube, but they did offer him a bottle today for the first time and he drank a little bit like a champ. The nurses were totally impressed.
Now that he has most of his tubes out and is awake more often, we just think he's the cutest thing and I cant resist getting my camera out every time we're there. Plus, he still can't have visitors, so this is the best way for everyone to "meet" our little miracle!