I think y'all probably knew (cause I told you a few or ten times) that we brought Caden to the cardiologist for the first time in six months yesterday morning. I cannot tell you how much I appreciate all your prayers and support and love.
The night before his appointment I was feeling inexplicably paralyzed by fears and a lack of peace about the whole thing. In fact, just thinking about it made me want to throw up. I dont really know why, except that maybe I have some unresolved issues and fears and memories from the time we spent with Caden in the hospital. And it's also a jarring reminder that even when life with Caden has seemed SO normal the last six months, he still has cardiologist appointments and things aren't REALLY completely normal. He will have more surgery, we need to keep an eye on him. And that's a hard thing to remember when we look at our silly little boy and his sweet little heart.
When Adam and I talked as we lay in bed that night about how we felt and what we thought they were going to say, we both agreed that we felt like they were going to say everything was fine. But that we were also afraid to fully let ourselves think or believe that. Anyways, we spent some time praying and surrendering our fears, and Caden, into the arms of a loving and patient Father.
So the appointment itself was LONG (like three hours long) and felt physically and emotionally exhausting as we chased Caden around and tried to entertain and quiet and keep him still while he missed his morning nap and was poked and prodded and measured.
The news was basically exactly what we expected; in other words, really good. He is doing really well, his heart function is good right now and everything looks just as they expected it to look. His murmur is a little louder (which, however, seems like a very subjective matter to me), and his pulmonary valve (as expected) is definitely going to be the next area of concern and why he will need more surgeries down the road. The doctor said, however, that it should be a few years before we need intervention, and that we can go six more months before coming back to the cardiologist!
Caden's cardiologist is a little bit all-over-the-place and I dont feel like I really got a very clear prognosis, however. During the echo he kept saying we were done and then he would see or hear something that made him want a closer picture so poor Caden kept getting dressed and undressed and I wasn't really sure what was going on. I think we might try and meet with a different cardiologist in the practice next time who hopefully wont be quite as confusing. So pray for wisdom in that too.
Thank you all again for your prayers and love and encouragement for me and our family and especially for Caden. Continue to pray for his little heart, and that we will keep enjoying many more normal years with our sweet little man.
The night before his appointment I was feeling inexplicably paralyzed by fears and a lack of peace about the whole thing. In fact, just thinking about it made me want to throw up. I dont really know why, except that maybe I have some unresolved issues and fears and memories from the time we spent with Caden in the hospital. And it's also a jarring reminder that even when life with Caden has seemed SO normal the last six months, he still has cardiologist appointments and things aren't REALLY completely normal. He will have more surgery, we need to keep an eye on him. And that's a hard thing to remember when we look at our silly little boy and his sweet little heart.
When Adam and I talked as we lay in bed that night about how we felt and what we thought they were going to say, we both agreed that we felt like they were going to say everything was fine. But that we were also afraid to fully let ourselves think or believe that. Anyways, we spent some time praying and surrendering our fears, and Caden, into the arms of a loving and patient Father.
So the appointment itself was LONG (like three hours long) and felt physically and emotionally exhausting as we chased Caden around and tried to entertain and quiet and keep him still while he missed his morning nap and was poked and prodded and measured.
Caden's cardiologist is a little bit all-over-the-place and I dont feel like I really got a very clear prognosis, however. During the echo he kept saying we were done and then he would see or hear something that made him want a closer picture so poor Caden kept getting dressed and undressed and I wasn't really sure what was going on. I think we might try and meet with a different cardiologist in the practice next time who hopefully wont be quite as confusing. So pray for wisdom in that too.
Thank you all again for your prayers and love and encouragement for me and our family and especially for Caden. Continue to pray for his little heart, and that we will keep enjoying many more normal years with our sweet little man.